Participants’ children (10 at present) continue to receive medical and health benefits. The last widow receiving THBP benefits died in January 2009. The last study participant died in January 2004.
In 1995, the program was expanded to include health, as well as medical, benefits.
In 1975, participants’ wives, widows and children were added to the program. 1 The Tuskegee Health Benefit Program (THBP) was established to provide these services. In March 1973, the panel also advised the Secretary of the Department of Health, Education, and Welfare (HEW) (now known as the Department of Health and Human Services) to instruct the USPHS to provide all necessary medical care for the survivors of the study. A month later, the Assistant Secretary for Health and Scientific Affairs announced the end external icon of the study.
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The advisory panel concluded pdf icon external icon that the study was “ethically unjustified” that is, the “results disproportionately meager compared with known risks to human subjects involved.” In October 1972, the panel advised stopping the study. As a result, the Assistant Secretary for Health and Scientific Affairs appointed an Ad Hoc Advisory Panel to review the study. In 1972, an Associated Press story external icon about the study was published.
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In exchange for taking part in the study, the men received free medical exams, free meals, and burial insurance.īy 1943, penicillin was the treatment of choice for syphilis and becoming widely available, but the participants in the study were not offered treatment. Researchers told the men they were being treated for “bad blood,” a local term used to describe several ailments, including syphilis, anemia, and fatigue. Participants’ informed consent was not collected. The study initially involved 600 Black men – 399 with syphilis, 201 who did not have the disease. It was originally called the “Tuskegee Study of Untreated Syphilis in the Negro Male” (now referred to as the “USPHS Syphilis Study at Tuskegee”). In 1932, the USPHS, working with the Tuskegee Institute, began a study to record the natural history of syphilis.
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